Thursday, February 2, 2012

Update

Where to begin...   Mommy and I haven't posted in awhile due to computer difficulties (and Mommy has been so tired.)  We are still having them, but are giving this our best shot.  So the latest news continues to be related to my sleep or lack there of.  Things had gotten so bad last week that Dr S was worried about sleep deprivation.  Marmee came into town to help Mommy who was exhausted and to assist her in finding someone to help with my ongoing issues.  Since there is not really any medication that babies can take for sleep we had gotten to the point of considering something serious.  The night we were suppose to try this I finally game in to exhaustion.  I literally passed out from exhaustion and slept for 10 hrs only waking up twice to eat.  That's the longest I have have slept since being off my anti-convulsent meds and the longest stretch I had in many months.  10 hrs was more than I had been getting in an entire day.  Well Mommy and Daddy knew that would be short lived so with the help of Maemee we called in an expert (Anna).  Anna came for two nights this week to try and "teach" me how to sleep.  My sleep training went well the first two nights but as soon as she left.....what is it that they say, "When the cats away the mice will play."  Well I decided to give Mommy a run for her money and threw all the rules out the window.  I am sleeping more hours in a day, but I'm still not meeting the totals someone my age should be getting.  Mommy is feeling hopeful that we are at least moving in the right direction.

Aidan is still sleeping in the basement and loving it.  He thinks he is on a permenant camp out.  Who wouldn't want to sleep in their playroom?  Maybe that explains why he is tired as well.
Mmmmmm Avocado with Ms Kelly






Mommy has been really struggling with giving me a bath.  The problem we were having was that I have long since outgrown my infant tub, don't sit yet, and am very active.  This seems to have ruled out most tubs.  Finally after many creative ideas from my OT and PT Mommy found a bath seat for me.  We I'm happy, mommy is happy, but Aidan is the happiest of us all.  He loves to help bathe me a night and have literally been begging to take a bath with me....
......so here we go.....

My tummy issues continue as well.  Last week my GI doc added another med to assist in my pooping.  As with everything, it worked at first but then stopped.  We are still working on this.  It seems to be an all or nothing kinda of thing for me.

Today I headed off to see Dr S for my 9 month wellness visit.  At a 20+ lbs I am now officially moving on to 18 month clothes (I'm really long).  We worked out a plan with Dr S to trying to get me back on track with my vaccines which had been put on hold.  I actually went to the doctor last week to rule out Whopping Cough (that was quite a scare).

This evening I had my first Neurology appt since my EEG came back normal.  My docs didn't have anything new to add.....all they can say is, "WOW"!  Long story short my neurologist told Mommy and Daddy we were lucky my EEG came back normal because he would only treat me if I was having seizures. 

Well we are batting down the hatches as they are saying we are to get up to 22" of snow over the next two days.  Maybe I will help Aidan with the snowman. 

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