Thursday, October 11, 2012

Holding my own

So I started the new medication and after a week had to stop due to some possible side effects that we were not sure were related to the medication or the virus I had.  After a week off the medication Mommy, Daddy and Dr L thought it was safe to restart.

I'm about to start my fourth week of the medication and so far so good.  What does that mean exactly, well I am no worse and seem to be moving in the right direction.  It's difficult to say what could be the medication and what is my normal progression.  We are walking a very fine line and having to monitor things very closely (weekly Neuro contacts, EKG's, EEG's, ultrasounds, lab work).  I am holding at a steady dose for now and will meet with Dr L in the morning to discuss where we go from here.

Adding to everything going one I have been struggling with teething.  For the past six weeks I have not been sleeping due to swollen gums and some tummy issues.  Night time is a difficult time for me, and mommy and I spend many (very) early morning hours listening to music and singing as that is the only thing that seems to help me calm down.  I will be going to my second music class this week; hoping to get my grove on again.

After hard work in therapy on using my hands I have now mastered the skill of waving.  I wave all day and night.... and doing a good job at my version of peek-a-boo.