Oh Poo.....!!!!

Anal Strep is what I have.  After Ms Kelly gave me a bath on Thursday night we noticed there were some marks on my bottom.  When I woke up on Friday morning my bottom was covered with blisters that began popping.  After a visit to Dr. Jen we were told I had Anal Strep.  I needed  to get on Antibiotics.  Mommy and Daddy really did not want me to take them since Aidan had a really bad reaction to Antibiotics when he has a baby.  But after much discussion with the docs we decided to start them.

Well it happened......as good as antibiotics are for some, they are not so good for my brother and I.  I have gone from struggling to poop to have 7 BM's a day.  That sounds all good but not when you have open blisters on your bottom.  I was doing so well with my sitting....up to 13 minutes at a time, but now I am struggling to sit for 30 seconds.  My sleep has suffered as well....I have been waking up in the middle of the night for the past few, screaming in pain trying to go poo.  To add to all this I am cutting my top two teeth.  Mommy and Daddy called my doc today trying to see if there is anything then can do to address things in a better manner.  We are trying a few different options and will see what that leads to.  For now we are taking each day as it comes and hoping that I don't end up in the ER like Aidan did when he took antibiotics. 

Food vs. Tummy

Its been a long week and a half.  My latest challenge has been dealing with foods.  I continue to struggle with low tone in my face so to address it I have a lists of exercises that we have to do.  With that comes textured foods.  We have been trying out various foods to help we address my tone.  Mommy and Ms Barb (my Speech Therapist) say I'm doing a wonderful job....stepping up to any and all challenges they put me up against.  The only problem being my darn tummy.   

Anytime we add anything to my died besides Mommy milk or a handful fruits and veggies the troubles start.  Last week we decided to give yogurt a try.  After a few days the troubles begin......slowly, then worsening every day.  Mommy, Daddy, Aidan, and Ms. Kelly all refer to we as some kind of wild animal.  A deep growl bellowing from for pit of my stomach begins, lasting for up to a hour.  I have been trying so hard for that past week to poop, but success has been minimal.  Mommy has been using all her tricks with minimum success ay bast.

It the midst of all my tummy issues Mommy and Daddy are still trying their best to get me out of the house as much as possible.  We loaded the crew up, including our crazy dog and headed off to the St. Patrick's Day Parade.  All I can say is WOW!!!!  Mommy kept me tucked safely in my new stroller and I peaked out every so often.  Our stay was rather short.  Much noise and crazy people, but I was a champ and had Aidan with me to keep me safe.

As you my know I have had long standing issues with the grocery store.  In the past I could barely tolerate more that 5 minutes whether in my stroller, carrier, or car seat.  The lights, noise, and pure caios would put me over the edge.  Many times it would take Mommy long periods of time rocking me in the car to settle me down.  So to say that we ventured out to the store is a huge deal.  After a long pep talk from Mommy we headed off.....

Who knew I would actually have fun.  As long as Mommy kept her hands on me I did fine; even laughing at times.  This makes things SOOOOO much easier for us.  Now Mommy doesn't have to have someone watch me at the house every time she needs to go to the store. 

Mommy will be calling my GI doctor today as my inability with poop with support is now having an impact on my therapies again.  AND....to top things off I'm cutting my top teeth as well.  We are excited about this!!!  Well not Aidan.....poor guy he was hoping to lose his first tooth before I cut mine. 

Upswing

Well you know how it goes.....as soon as someone in the house gets better another person gets sick.  Poor Aidan.  He woke-up Tuesday morning with a terrible stomach bug and had to stay home from school.  Mommy had to cancel my OT since Ms Julie works with so many medically fragile children we didn't want her to carry any germs to them.  So I missed another therapy.  After much TLC Aidan recovered.  It was such a beautiful day; an unusual 70 degrees.  So Mommy called Ms Beth my PT and asked if she could come and we would do our session outside.  Ms. Beth was all for it....so out came my sunglasses.  Up until now I have not been a fan of these things, but they really do make all the difference.  I am still really sensitive to light. 

Ms. Beth was so impressed.  I am sitting better each day, up to 6 minutes at a time.  On Wednesday Mommy and I had an appt with my GI doctor.  I'm still recovering from some unexpected tummy issues.  We found out the hard way that my tummy is still not tolerating cereal....it backs me up for days.  So to counteract it we did some med tweaking and are hoping that will address things. 

Today was a great day.  Mommy went to school to watch Aidan get an award at school for his continuing drive to learn.  We are so proud of him.....I wish I could have been there.  Afterwards we decided to bundle up and go for a walk.  It was yet another beautiful day in Denver.  Mommy was showing Ms. Kelly so new paths to take with me and we decided to stop by the park and see what I thought of the swings. I have never been on a swing before and have to say I loved it. 

 Things continue to move in the right direction.  I have decided to start sleeping through the night.  Mommy still consults with Ms. Anne, but for the most part I am sleeping like I should be.

 I have also been tolerating the car seat and stroller more and more.  Summer is just around the corner and I can't wait to take my first trip to the pool.  Just a few more weeks and I will take my first trip to Louisiana.  I can't wait to meet everyone who were so thoughtful and prayed for me. 

Making progress

Last week was a difficult one.  My breathing became worse so Mommy had to take me back to the doctor.  Dr E got me hooked up with a nebulizer which helped get my O2 level back up....it had gotten pretty low and had everyone really concerned.

Once my O2 was back up I regained my strength and energy and was ready to get our and about.  I have really been enjoying getting out of the house.  Daddy was out of town so Mommy, Ms Kelly and Aidan took meout to dinner.  We had a blast and I even got to eat dinner like a big girl at the restaurant with everyone. 

 

I'm finally getting over this RSV things.  My cough is lingering but I have been able to move back up to my bedroom.  Mommy and Daddy are back on track and trying to get me out every weekend.  This weekend I went to the mall and spent some time in my big girl stroller.  I am tolerating being in the stroller and car seat much better.  It seems to be a combination of things, but my tummy has been much better lately.  I have gone poo every day for the past week and a half......without the assistance of a stimulant.  That is a really big deal.  We are not sure if I have just figured it out or if it is related to the virus.  Who knows but we all think it is great. 

On Friday I turned 10 months old and as my present I cut my first tooth.  Mommy found out the hard way and informed me we are done with nursing!!!  Sorry Mommy.

Please ignore the large scratch on my head.  I was working hard on my exercises when our crazy dog stepped on my face.  Lets just call it a character scar.