It's taking a Village

The past two weeks have been difficult.  My inability to sleep is starting to take it tole on everyone in the house.  After talking to Dr S last week about their concerns Mommy and Daddy were told that my sleep deprivation was becoming a concern and that they needed to do what they could to help me sleep.  Well they had already been doing that, so drastic times call for drastic measures.  We were told that my lack of sleep was more likely to cause a return of seizures that my crying because I didn't want to sleep.....and so it began.  Mommy started with naps.....letting me fuss a few minutes and they coming in to tell me it's OK, etc.  Well it seemed like things started to work (nap wise, that is).  I was starting to consistently have 3 naps a day, but they drastically change in length which makes it impossible to develop any type of schedule.  That in turn made nights even more crazy because I was never waking up at consistent times.  Mommy and Daddy were trying their best to make things as normal for Aidan as they could, but the "fit hit the shan" this weekend when both Aidan and I got sick.

Aidan spent the weekend with Uncle Widg and Aunt Destin and I kept Mommy and Daddy on their toes all weekend.  So the vicious cycle begins.  I'm sick and very congested, thus not breathing well which impacts my sleep even more.  The less sleep I get the weaker I am which makes it even more difficult to go poo. Since I'm all stopped up and my tummy hurts more than usual I cut back on my nursing a good bit.

Poor Ms Kelly tried everything yesterday to help me sleep but nothing seemed to work.  So Mommy took over and she took on the task of the dreaded Kindergarten spelling test.

What's a girl to do.  I'm so tired I'm not enjoying my jumperoo anymore and just sit there unable to hold my head up due to exhaustion.

Tomorrow I follow up with my GI doc to see what else he can do to help and we are working with Dr S to see what else we can to to try and get some sleep.

Grandma is coming over this afternoon, Aunt Destin is coming over tonight to give Mommy a break and Mommy and I got a surprise call from Marmee saying she is on the way to help as well.  We are so lucky to have such wonderful family that do what they can at the drop of a hat.

TIRED

Sleep.....hummm.....not sure what I have to say about that except that it is not coming easy.  For the past week each day has been worse than the previous.  Things have gotten to the point that I'm only sleeping half of the time a baby my age should be sleeping (7-9 hours in a 24 hour period).  We have pulled out all the stops and nothing seems to be working.  We are now working with Dr. S to see what we can come up with.  It's making for a VERY tired household.  My inability to sleep is impacting every part of my life and I'm not progressing in my therapies anymore.  I'm even struggling nursing and eating solids (see the pic below - I struggle at holding my head up for dinner) and I don't jump in my bouncer. 

My sleeplessness is not the only battle we are fighting right now.  My reflux and tummy issues are reeking havoc as well.  My days are SOOOOO structured right now trying to come up with a schedule it is impossible for Mommy to leave the house.  But we left today to go to the chiropracotor, hoping that Katelin could provide some help.

Uncle Widg and Aunt Destin took Aidan to the Stock show this weekend.  I so wanted to go but it was not in the cards for me.  Aidan did share his cowboy hat with me.  I have decided that I'm gonna go next year it sounds like so much fun.

After the stock show Aidan asked if he could feed me my bedtime bottle and tell me all about his day.  I love spending time with him and he can always get a smile out of me even when I'm exhausted. 

So here's to getting on a schedule, to decent sleep, to less reflux, and pooping on my own.  Mommy, Daddy and I decided enough with all that and things are gonna start changing today......we hope.

Disregard the dark circles under my eyes.