Mommy has been working hard to try and reach out to others who are struggling with the same mutation. We have found families to 3 others states, one in Canada, and we believe there are two other families here in Colorado. We started a yahoo group for those with KCNQ2 so we can network. Our doctors are in the process of getting a study up and going to see if the medication I'm on can help other children with their seizure control. We are in the middle of another medication increase, as we are still not sure if my progress in related to the medication or my natural path.
|Love my Uncle Widg!!!|
|Gotta put on my best for Dr. L|
|Supervising Aidan's homework.|
|Not sure about this Sippy Cup thing!!! Think I'm gonna fight this one tooth and nail.|
|Faking a nap so I can avoid therapy.|
|Thanks to Aunt Destin I was the cutest witch on Halloween|