I'm about to start my fourth week of the medication and so far so good. What does that mean exactly, well I am no worse and seem to be moving in the right direction. It's difficult to say what could be the medication and what is my normal progression. We are walking a very fine line and having to monitor things very closely (weekly Neuro contacts, EKG's, EEG's, ultrasounds, lab work). I am holding at a steady dose for now and will meet with Dr L in the morning to discuss where we go from here.
Adding to everything going one I have been struggling with teething. For the past six weeks I have not been sleeping due to swollen gums and some tummy issues. Night time is a difficult time for me, and mommy and I spend many (very) early morning hours listening to music and singing as that is the only thing that seems to help me calm down. I will be going to my second music class this week; hoping to get my grove on again.
After hard work in therapy on using my hands I have now mastered the skill of waving. I wave all day and night.... and doing a good job at my version of peek-a-boo.