What an intense past few days. On Wednesday Mommy finally got me into another GI specialists to get another opinion. After we waited for an hour and a half the doc finally came in and did not have much more to offer than the past docs. Basically he stated the obvious. We will try a few tricks and are hoping they work.
On Thursday I had PT and Ms. Beth said she thought I was getting stronger in my shoulders. This is good news since my lack of shoulder and trunk strength are what are preventing me from sitting. I am working really hard and we are hoping that as soon as we get my tummy issues under control I will be able to practice sitting.
Today was an intense day. After much discussion between my parents we decided to have another EEG. Since I am officially off all anti-convulsants we wanted to see how things are going. So off to Children's Hospital today we went. It was a sleep deprived EEG so Mommy had to keep me awake most of the day and that just equaled much screaming. Things escalated so much that Mommy called the hospital begging them to get me in earlier. They did......but I screamed the entire way evlessen though Aunt Destin was doing her best to calm me down. The three of us are VERY thankful that the hospital is less than 10 minutes away......well at least the way Mommy drives.
After much trying I finally calmed down a fell asleep. We are not expecting to hear results anytime soon since we scared the doctor the last time we saw her. Mommy and Aunt Destin tried their best to get the EEG tech to tell us what she saw, but she wouldn't give. So we are left with a weekend to pray and hope for Christmas Magic that all looks the same or better than before and that the hypsarrhythmia has not come back.
After a crazy ride home it was great to be back in my own swing and to see my brother. He apparently has a great time learning about dinosaurs with Ms. Kelly. So we ended these past few days by having some family snuggle time on the couch watching Frosty the Snowman.
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