Getting back on track

I had a great time visiting with my Uncle's, Aunt's and cousins who were visiting from the Maryland.  I surprised everyone and have been showing big smiles everyday.  In the process of coming off of the ACTH (the med that stopped my clinical seizures) due to side effects.  We are hoping and praying that my seizures don't come back and my little brain has a chance to catch up as I'm behind on some of my developmental milestones.  My mom and Aunt Destin are trying to get me to drop one on my night bottles so my mom can get some sleep on nights that Aunt Destin doesn't take care of me.  I have a long week with many doctor's appts and hoping all news is positive.